This blog, however, is mainly about the Crohn's Disease part.
I was diagnosed in 2010 after a lifetime of having a "nervous stomach" and about a year of said stomach being so "nervous" that I couldn't eat anything but plain crackers. The diagnosis came a few short days after my eighteenth birthday and just before my high school's turnabout dance, which taught me a valuable lesson about chronic illness very early –– it doesn't work very well with your schedule.
I went on medicine and was (mostly) fine for a long time. I never had the stomach of a normal person, and I got tired way quicker than my other college friends, but I was determined to live life as a "normal kid," no matter how much denial that required.
Since then, my cavalier attitude about my fairly serious symptoms has landed me in the hospital. It's gotten me into some flares so bad that I spent a year on steroids. Since then, I’ve added diagnoses like asthma, anemia and chronic idiopathic urticaria to my bag of tricks. But these unfortunate twists also got me into the idea of blogging about my experience!
I am here, writing this blog, because I am a writer by trade who also happens to have Crohn's Disease. Writing is my favorite (and only) way of coping with stuff in my life that is not rainbows and unicorns. I am writing this blog for me, but also for anyone out there who can’t put their feelings into words.
I’m just someone who doesn't really know how to cope with all the things happening in and to her body. I’m someone who gets occasionally bitter about the whole "invisible illness" thing, because people don't seem to understand that it means you're actually sick. I’m someone who is always on a lot of pills, and not in like a fun, Fear And Loathing in Las Vegas kind of way.
But I’m also a girl with a social life! And a love of alcohol, when I can drink it! And a cool job! And a lack of willpower at Sephora!
All of this is simply to say that I'm gonna talk about stuff. Like the complex relationship my disease has with food. And the toll physical illness can take on your mental health. And how patients can advocate for themselves, personally and politically. Basically, I want a place where we can all feel a little less alone.
My hope is that this blog can serve as a resource not only for patients, but for their loved ones who may be looking for insight into what being sick is like. Sometimes sharing a link to a blog post is easier than getting vulnerable and trying to explain things in your own words. Have a question for me or a specific topic you'd like me to consider covering? Head over to my contact page.